Things are looking good for us to be able to go home next week!!! We are so excited that neither one of us can sleep in anticipation. It's pretty pathetic when you are that excited about just getting to be in your own house. Brian has had blood work done twice in the last 3 days and the results, while not great, are good enough for us to travel. He is already on some shots to help increase his white blood cells and therefore boost his immunity and they gave him another shot today to try to do the same for his red blood cells. He was borderline on needing another blood transfusion today, but the dr opted for the shot instead since he wasn't below a certain level. We have asked all the drs if it would be ok for us to travel next week and they are ok with it, so we are so excited. We have our last appt Monday morning and as long as nothing has dropped too dramatically and his levels are good we are hoping to come home Monday afternoon or Tuesday morning. Of course we are still praying like crazy because there are still a lot of things that have to go right in order for us to make it. We may have to go to the dr a few times while we are in Dallas for blood work, but that should be it. He hasn't gone that long before without blood work done, so we are nervous about going a week and not knowing his levels. Hopefully this will be a great "vacation" before he starts on the 5th round the following Monday.
Brian had his 8th lumbar puncture on Wednesday and his side effects seem to be getting better (only 8 more to go!). He puts an ice pack on his back immediately after the procedure and wears what they call a binder around his stomach for the few days following and it seems to help force the blood into his spine so he can heal quicker. I think we may have finally figured out something that works and gives him less complications. They were also able to change his migraine medicine to something stronger than Imitrex so that when he needs it hopefully it will work better.
These past few days have been great. The thought of going home has lifted our spirits and we already have a long list of things we need to do once we are there. Brian's best friend, Jeff, was in town again last night and Brian felt well enough for us to go out to dinner at a local restaraunt and we all really had a great time. I hope everyone has a wonderful weekend and I'll hopefully update the blog with some great news Monday.
Happy 31st anniversary Mom and Dad!!!!
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6 comments:
PRAISES!!!!!! That is fantastic news - we will be in prayer for your health & strength for the trip! I sure hope you get to come home next week!!!! Keep us posted & let us know if you need anything. AWESOME NEWS! Lots of love & prayers - you 2 are amazing!
I am SO EXCITED that you may be able to make it home for a week! My prayers will be directed toward that. I am so impressed with your strength. You are both truly inspirations to many of us! Lots of love to you both.
Donna
P.S. Let me add my condolences....um, I mean my congratulations to Joyce for putting up with Gary for 31 years! Way to go, you guys!
Wonderful. I hope you both enjoy the familiarity of your own home! We'll be praying.
Hey Guys,
We miss you guys so much and we will be praying for a safe and healthy trip home. Both of you are amazing and so strong. We are praying for you everyday.
Love yah,
Clint and Tonya
I'm so very sorry that you won't get to come home this week. I know you had your heart set on it. At least you had a few hours of the excitement and hopes that you'd get to be back in Frisco for a few days. Don't give up hope yet. Maybe the transfusions will be quick and Brian will respond very well. If you can't manage a trip back here, then maybe Galveston just to get away for awhile? Stay positive. I love you both very much.
We are so excited that you may get to come home! You all have amazing strength. I read your updates and am amazed at what you all have endured emotionally and for Brian physically. You both remain in our prayers. Have a safe trip! Love Stacy and John
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